Saturday, November 22, 2008

From MS to Spinal Stenosis

After my wife's attack of Transverse Myelitis in September 2006, the follow up visits with her neurologists consisted of ...
  • Cursory reflex and strength tests.
  • Discussions of pain med dosage.
  • Comments like, "You probably have MS."
But the most recent visit went like this ...
  • Cursory reflex and strength tests.
  • Discussions of pain med dosage.
  • Comments like, "You probably don't have MS."
This time, we actually had an MRI we could look at and actually see Spinal Stenosis.

My wife is still reeling from this new development. After more than two years of hearing about how she harbors rare, inexplicable and incurable diseases, we now have something that's common and treatable. So on the one hand, she's certainly glad that she not under the sentence of MS. However, she's extremely apprehensive about having surgery to remove the impinging tissue.

There's also the uncertainty of how much pain is caused by the lingering effect of myelitis, and how much is due to the stenosis. If she knew that an operation would mean that she could stop taking Neurontin, Baclofen, Cymbalta and Ultram, she'd probably be hopeful. But suppose she undergoes a successful operation and still has the same pain as before?

4 comments:

Lynne said...

I am sending you both lots of good vibes~ The whole medical thing is such a bummer...to put it mildly.

Anonymous said...

Thank you so much for your kindness.

Anonymous said...

I'm so glad it isn't MS. My sister-in-law struggled with it for 21 years...she passed away last July.

Good luck with the surgery, I'm sending my prayers/good vibes. Please keep us posted.

Anonymous said...

I'm sorry to hear about your sister-in-law.

Thank you for your kind thoughts.